Coordinates day-to-day activities of the SPARK study (Simons Foundation Powering Autism Research for Knowledge; www.sparkforautism.org/texaschildrens) at the Baylor College of Medicine/Texas Children's Hospital site. Responsibilities include screening, enrolling, and conducting follow-up with research participants; monitoring data collection and data quality; evaluating effectiveness of various recruitment strategies; and performing all study related activities in accordance with IRB guidelines and ethical practices.
Interviews, screens, and recruits participants for the study; explains all processes and procedures to potential participants, as well as risks and benefits of participation.
Uses research functions within the electronic medical record (Epic) to effectively identify and recruit potential participants.
Creates and manages Excel spreadsheets to aid the study team in outreach efforts and evaluation of best-practice-alert initiatives.
Supports families with study registration by phone, email, and/or during live enrollments events.
Collects saliva sample s for genetic analysis on children and adults during events and clinic appointments.
Corresponds with participants as needed throughout the study to answer questions, resolve problems, and provide support with the return of genetic findings.
Schedules research participants for study-related procedures to be performed during clinic appointments and/or at live enrollment events.
Organizes frequent live enrollment events at the Autism Center or in conjunction with community partners.
Education Required: High School diploma or GED.
Experience Required: Three years of relevant experience.
Bachelor's degree in a related field
At least one year of relevant experience
Work is located In clinics, hospitals, office areas, and community-partner sites where there are potential exposures to blood borne pathogens (blood and/or other potentially infectious materials), drugs, chemicals, radiation , and physical hazards. Patient interaction and interaction with other employees is required
Must be able to communicate effectively, both orally and In writing
Must be comfortable calling families by phone, explaining all aspects of the study, and answering questions
Must have prior experience with computer spreadsheets and database management
Prefer experience with electronic health records but not required
Prefer experience with marketing via social media but not required
Baylor College of Medicine is an Equal Opportunity/Affirmative Action/Equal Access Employer.
Baylor College of Medicine fosters diversity among its students, trainees, faculty and staff as a prerequisite to accomplishing our institutional mission, and setting standards for excellence in training healthcare providers and biomedical scientists, promoting scientific innovation, and providing patient-centered care.
- Diversity, respect, and inclusiveness create an environment that is conducive to academic excellence, and strengthens our institution by increasing talent, encouraging creativity, and ensuring a broader perspective.
- Diversity helps position Baylor to reduce disparities in health and healthcare access and to better address the needs of the community we serve.
- Baylor is committed to recruiting and retaining outstanding students, trainees, faculty and staff from diverse backgrounds by providing a welcoming, supportive learning environment for all members of the Baylor community.